Her parents lovingly named her their "pillow angel" because she is "so sweet and stays right where we place her—usually on a pillow." But the simple and ethereal term belies the controversy that has surrounded Ashley, the "pillow angel", and her parents for the last six weeks.
In January of this year, a story broke that unleashed a media torrent and a worldwide discussion outwardly centered on medical ethics. Unpeel the layers, however, and you find a story that shares a great deal in common with the quest for reproductive justice and what it means to be able to sincerely and lovingly make a choice that may seem, to outsiders, the wrong choice—and therefore the unacceptable choice—but an individual's loving choice all the same. At the center of the story, Ashley, a now nine-year-old girl who was diagnosed at 3 months old with "static encephalopathy of unknown etiology"—an unchanging brain abnormality that sentences Ashley to live the mental and developmental life of a three month-old infant while her body continues to age normally. Ashley cannot move or talk but she is expected to live a long life. To read the story of Ashley's early life on her parent's blog is both heartbreaking and beautiful.
