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Do All Women Have the Right to Become Mothers?

Pamela Merritt on May 27, 2008 - 5:00am
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Several thousand dollars for fertility treatment? Even as I gasped in shock at the high cost, the subject of the documentary film I was watching exhaled in relief because she was able to afford it. "This is worth it," she told her partner, and I could tell by the emotion in her voice that she meant it.

But I wondered how low-income and poor people were able to afford infertility treatment when the cost is so high and coverage so limited. I know a lot of people who intend to have a baby but could not afford thousands of dollars if they were diagnosed with infertility and I imagine that they would be devastated. The desire to become a parent is not connected to an individual's ability to afford infertility treatments. Yet treatment for infertility remains prohibitively expensive to many women and couples.

In many ways, access to and the affordability of infertility treatments speaks to our society's view of who is considered worthy of motherhood.

Infertility is defined as the inability to conceive a child after attempting to do so over the course of 12 months, and it can affect men and women. Approximately 10 percent of the population will experience infertility, reflecting a diverse group of people representing all socioeconomic levels and backgrounds. There are many different causes of infertility. About one-third of all infertility cases can be attributed to males, another one-third to females and the remaining one-third to either a male or female condition or to an unidentifiable cause.

Coverage of infertility treatment is usually limited whether it is provided through public or private insurance. Many insurance plans do not provide coverage for the more advanced and expensive procedures or treatments and only one-quarter of states require private plans to cover certain forms of infertility treatment with the specific details of that mandated coverage varying widely from state to state. Currently 15 states require insurance coverage for infertility treatments.

The result is that many people are not able to treat infertility due to the high costs associated with medical treatment and lack of adequate insurance coverage. Some women have even taken to purchasing the drugs required for some treatments online through the so-called "black market" where fertility patients often sell left over medication at a discount in an attempt to recoup some of their investment. Despite the risk of purchasing counterfeit or potentially damaged medication, some patients go online to cut treatment costs where they can. And some doctors are concerned that women may be self-medicating without medical supervision and thus putting their health at risk.

When I looked online for information about infertility coverage for low-income or poor women, I stumbled on a blog whose author stated, "I thought that the cure all for infertility was to just go on welfare. In no time you'll have one on each tit and another in the oven." The post mocked a pharmacy client on Medicaid who had requested a prescription be filled for a medication to treat infertility. The author was disgusted that anyone on public assistance would try to get pregnant and assumed that the client was trying to exploit the system. Many of the comments posted expressed the view that low-income people shouldn't be allowed to treat infertility because they wouldn't be able to provide for a child on their own. Other comments boldly claimed that society had the right to deny medical treatment for infertility to poor women because they were on public assistance.

Decades after eugenics was debunked and fell out of favor as a movement to "improve society," the residue lingers: there is a strongly held belief that pregnancy and income should be connected. President Reagan tapped into that sentiment with his infamous comment about a "welfare queen," but the core belief is as old as the American Dream: people who are poor are considered lazy, deserving of poverty and undeserving of anything it takes money to buy. Low-income women who are faced with infertility and seek treatment are suspected of trying to work the system and defraud society.

The belief that low-income and poor people do not have the right to medical treatment for infertility is disturbing enough on its own but it is particularly disturbing when you add in the factor of time. A woman's ability to conceive and carry a pregnancy to term begins to decline significantly when she reaches her mid-thirties with that rate of decline accelerating as she enters her forties. The window of time in which a woman can successfully treat infertility leads many women to adjust priorities and pursue pregnancy despite their current economic status.

This election year, universal healthcare coverage is a key issue, but universal coverage for infertility treatments has not been part of the discussion even though infertility treatment remains economically out of reach for many who need it. As a reproductive justice issue, the right to choose is clearly being denied those seeking treatment for infertility. But the reproductive rights of low-income and poor people continue to be held hostage to the values of a society that associates money with a person's worthiness to receive medical treatment.

As some supporters of universal healthcare push for mandates that would require every American to be insured, the lack of clarity over what specifically will be covered leaves low-income and poor women vulnerable to the whims of those who feel pregnancy is a privilege reserved for some and denied to others. As a result, many people confronted with infertility will weigh their dream of becoming parents against the limits of their income and continue to face high costs and limited coverage even if universal healthcare becomes a reality in America.

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17 comments

Dorothy Roberts also floated the idea in her book Killing The Black Body of creating a rough equality on this issue by making infertility treatments harder to get.  I mean, she immediately backed off it, because it's never going to fly, but it was more a thought experiment.  One thing she mentioned that I thought was interesting was that a lot of infertility specialists will move onto more invasive treatments before covering basic ground (like measuring the man's sperm count), because men initiate going to the specialist a lot more than women, and therefore (she speculated) specialists are far more interested in tip-toeing around male egos. 

 

Of course, the book is 12 years old, so maybe things have changed.

Submitted by Amanda Marcotte, RH Reality Check on May 28, 2008 - 9:08am.

The article and reply are both interesting....however, as progressive,
people we need to go much deeper into thinking about this. A right to
be a mother does not necessarily equal a duty from society to provide
infertility treatments. The fact is that health care disparities and
wealth distribution inequalities allow for some people to have access
to technologies which for society as a whole have dubious priority over
other health concerns. In my opinion, infertility is not as high a
priority to solve the inequality of opportunity to access to treatment
as other health issues, specially if we consider developing countries
and the populations in them as part of society as well.
Thanks for the article. Definitely lots of thinking to do on the
subject.

Submitted by Moises Russo, RH Reality Check, South America on May 28, 2008 - 2:46pm.

You're absolutely right about equalizing access to fertility treatment (as part of decisions we'll need to make about what counts as universal health care).

There's also a lot to think about in terms of the kind of assisted reproduction technologies & practices we want to encourage. Some problematic ones:

  • commercial surrogacy, especially when the "womb for rent" belongs to a poor woman;

  • selecting a future child's sex for cultural reasons (read discrimination against girls and women) or parental preference;

  • selecting against "disabilities" across the board, as disability rights advocates have long criticized.

For lots more on these & related topics, see the Center for Genetics and Society website and our blog, Biopolitical Times.

Submitted by Marcy Darnovsky on May 28, 2008 - 3:02pm.

"There's also a lot to think about in terms of the kind of assisted reproduction technologies & practices we want to encourage. Some problematic ones:
commercial surrogacy, especially when the 'womb for rent' belongs to a poor woman;..."

Good point. Surrogate mothers are people themselves, not just infertility treatments for other people!

I hope respecting the right to have children never includes a government pressuring lower-income women to be surrogate mothers so it'll have enough for every lower- or middle-income man in its jurisdiction who doesn't have a female partner, can't find a surrogate motherhood volunteer on his own, and still wants to exercise the right to conceive...

Submitted by Mina on June 8, 2008 - 3:22pm.

One does not have to give birth to be a mother.

The title and the tag line at feministing that linked me here is self serving (for this article/your purposes) and insulting to any of us who have mothered children we have not birthed.

Submitted by Anonymous on June 8, 2008 - 5:08pm.

Nitpicking from a scientist and arm-chair philosopher: eugenics has certainly declined in popularity, but it has not been "debunked." Eugenics, in its most general form, is a normative position based on well-accepted principles of natural selection, and so really can only be "debunked" by debunking evolution, and if you can do that you'll be in the history books a thousand years hence.

Other than that, you can simply disagree with the normative part of the equation, and most people do, but it's not strictly right to say that eugenics is "wrong" in the same sense that, for instance, astrology is wrong.

Submitted by Alice G. on June 8, 2008 - 5:45pm.

I also came across this through feministing. I have long been appalled at infertility treatments and the lengths to which some people will go in order to have a child of their "own", as opposed to adopting one of the many children who would otherwise live in horrible conditions or die from malnourishment and lack of medical care. Carrying a baby fullterm does not a mother make - pregnancy is only a small part of motherhood.

I personally wish that infertility treatments were even more cost-prohibitive than they already are. People should not create lives unnaturally when there are so many children who are deserving of a nurturing family.

Submitted by K. on June 8, 2008 - 5:57pm.

K. -
I understand where this attitude comes from, but it seems that you don't know very much about the adoption process.

If adoption were free (or low-cost) and easy, this might be valid argument. But the adoption process often costs tens of thousands of dollars and can take years - both domestic and international adoption. It's often just as difficult - if not MORE difficult - a process as fertility treatments.

All of those deserving children can't just be scooped up in adoption, and making fertility treatments "even more cost-prohibitive" wouldn't be helping anyone.

Submitted by Jessica A on June 8, 2008 - 7:19pm.

"If adoption were free (or low-cost) and easy, this might be valid argument. But the adoption process often costs tens of thousands of dollars and can take years - both domestic and international adoption. It's often just as difficult - if not MORE difficult - a process as fertility treatments."

Especially since the women and girls who gave birth sometimes get a say (and should get more of a say!). If a mother choosing an adoptive family for her baby rules out any lower-income would-be adopter, is she exercising her rights or violating someone else's rights?

Submitted by Mina on June 8, 2008 - 7:32pm.

If a mother choosing an adoptive family for her baby rules out any lower-income would-be adopter, is she exercising her rights or violating someone else's rights?


All else being equal, is it better to put your child in a home that will have access to good healthcare, or one which will not? Since quality healthcare is not an entitlement in the US at the moment, the economic class of the would-be parents comes into consideration for this reason, and so higher-class parents are always preferable, assuming that you believe parents of all economic classes can be equally as caring, responsible, and competent.

Submitted by Alice G. on June 8, 2008 - 8:46pm.

only one-quarter of states require private plans to cover certain forms of infertility treatment with the specific details of that mandated coverage varying widely from state to state. Currently 15 states require insurance coverage for infertility treatments.

The result is that many people are not able to treat infertility due to the high costs associated with medical treatment and lack of adequate insurance coverage.
The flip side: when infertility treatments become a mandated part of insurance coverage, the cost of insurance skyrockets beyond most people's ability to pay for it. Massachusetts learned this lesson the hard way. It mandated infertility treatment for the reasons outlined above, then found that many of its citizens could not afford the deluxe insurance and were uninsured instead.

Reality is that the money for these (very expensive) treatments has to come from somewhere. Adding it into insurance only forces the middle class out of the insurance market, which is much more harmful to society than infertility. As a single data point, MA insurance costs roughly three times what comparable coverage costs in other parts of the country. Is it worth it to bankrupt some families with medical bills so that everyone can have their own babies?

FYI - infertility treatments aren't expensive because people are trying to price the poor out of the market; they are expensive because they are long, complicated procedures requiring the assistance of highly-trained specialists. (Consider that buying donor eggs runs in the several thousand dollars alone; arguably, with the health risks involved, even this is not sufficient compensation for the young women involved.)

Submitted by Anonymous on June 9, 2008 - 2:28am.

(Consider that buying donor eggs runs in the several thousand dollars alone; arguably, with the health risks involved, even this is not sufficient compensation for the young women involved.)


If it wasn't sufficient compensation, they wouldn't be doing it. Or else, they don't know what's good for them, but if that were the case they shouldn't be handling their own medical decisions in the first place, a condition which doesn't apply most of the time.

Submitted by Alice G. on June 9, 2008 - 4:49am.

This may sound cold -- but we should be discouraging fertility treatments for anyone, anywhere, at any income level. Our planet already has several billion more people than it can sustain well. The lifestyles we enjoy in western societies are not available to the rest of world, not because of money but simply because there aren't enough resources on the planet for all the people alive to have them. Those with western lifestyles aren't about to give them up for people in poorer countries. Part of the solution is fewer citizens in richer countries, not more because we can afford to use medical resources to create them. It has nothing to do with low or high income -- if you live in the US or Europe, there is a very low risk of you not having shelter, clean water, and enough to eat and feed your family. Surely we realize that's not the case for most of the planet.

Submitted by Anonymous on June 9, 2008 - 11:37am.

My spouse and I don't consider ourselves low income, but if we didn't have insurance we probably wouldn't have been able to afford IVF. Illinois requires insurance to provide three IVF cycles, and that would've cost us close to $50K without it. So if you are not insured regardless of your income you're probably priced out of a lot of infertility treatments.

And guess what? It didn't work anyway! You don't have a "right" to bear a child, any more than you have a right to not fall down the stairs and become paralyzed. Being infertile is a tragic thing that happens to some people, and that's reality - not "society" taking some right away.

Infertility treatments are basically a super-high stakes gamble. It costs tens of thousands to buy in, and if you win you get something that you could never put a price on. If you lose, you're out a couple years of your life plus the associated misery and some not necessarily small part of your dignity. I'm not so sure it's that great an idea for government or society to stake people in that bet.

Submitted by DS on June 9, 2008 - 11:41am.

I totally agree.

What REALLY annoys me is the attiude I read into the article that imples that the dubious 'right' to do somehting includes the 'right' to take OTHER PEOPLE'S money to do it.

Does someone have the 'right' to have a baby? Sure! If htey can -

I also have the RIGHT to keep their dirty thieivng fingers out of MY pocket!

Submitted by electric_bonzai on June 14, 2008 - 10:00am.

This is really interesting, though I'm not sure where I stand.
I agree that seeing biological conception can hardly be framed as a right of infertile people. The rights rethoric is sometimes useful, but can slide into a slippery slope easily.

I think one interesting way too look at it is to see what matters most for infertile people - reproducing your own genes, or parenting and helping a kid grow up and become an person? For sure adoption is no picnic, it's expensive and complicated - and is harder for single persons and same-sex couples. I certainly do think as a society we should make it easier for people who want to be parents to achieve their dreams. However if people want to be parents if and only if their child is genetically related to them - somehow it seems like the wrong reason to do it, and I'm not sure I want to encourage that.

It's not a matter of population control or the starving little Africans or the thousands of Chinese baby girls in orphanages. Netiher is it about how much it costs. It's more a matter of what's at the heart of parenting - sharing values, teaching a worldview, journeying with a person as they mature and helping them become all that they can.

Submitted by Anaïs on June 14, 2008 - 2:58pm.

I am not too wild about providing high tech services free in whatever single payer or insurance solution is provided the poor. I'd rather spend the public money supporting means-tested subsidies for adoption, guaranteed health care for the adopted child, better foster care systems. In medical care, certainly a basic workup should be included: hormonal studies and other studies related to identification of polycystic ovary syndrome, studies of patency of Fallopian tubes, sperm counts of partner, endometrial biopsy to identify common medically treatable cause of infertility, and so on. Basic treatment: Free anonymous-donor sperm and artificial insemination. Lysis of endometriosis adhesions. Myomectomy. Hormonal manipulation. Treatment of infection.

Not included: surrogacy and the more complicated in-vitro procedures.

I just don't think that the public health system can afford large-demand, high cost treatment for non-life or non-health threatening conditions. I'd rather get the basics to people first. It pisses me off that uninsured lower income people can get Medicaid funded for an inpatient cancer surgery but not for the subsequent standard-of-care chemotherapy because the chemo is delivered in an outpatient setting.

Submitted by NancyP on June 28, 2008 - 6:51pm.